I got a call from my sweet man the other night saying he has a delivery for me I asked him to opened it for me and this is what was inside:
I will try this when I get home 🙂
My Health Update:
I went to see my Endocrinologist on Wednesday it was so nice to see him in person and not through a Webcam through Telehealth He asked me a few questions and said he could see how hard I have been trying to get better and that I now have also been diagnosed with Chronic Fatigue Syndrome. He said there is no cure no tablets to take there’s no knowing if I will ever get better just listen to my body and don’t do to much as I may go backwards and he didn’t want that for me as I have come so far. Here is what the Syndrome is all about:
Chronic fatigue syndrome (CFS), also referred to as myalgic encephalomyelitis (ME), is a medical condition characterized by long-term fatigue and other long-term symptoms that limit a person’s ability to carry out ordinary daily activities.
While the cause is not understood, proposed mechanisms include biological, genetic, infectious and psychological. Diagnosis is based on a person’s symptoms because there is no confirmed diagnostic test. The fatiguein CFS is not due to strenuous ongoing exertion, is not much relieved by rest and is not due to a previous medical condition. Fatigue is a common symptom in many illnesses, but the unexplained fatigue and severity of functional impairment in CFS is comparatively rare.
There is no cure, with treatment being symptomatic. No medications or procedures have been approved in the United States. Evidence suggests that cognitive behavioral therapy (CBT) and a gradual increase in activity suited to individual capacity can be beneficial in some cases. In a systematic review of exercise therapy, no evidence of serious adverse effects was found, however data was insufficient to form a conclusion.Some patient support groups have criticized the use of CBT and graded exercise therapy (GET). Tentative evidence supports the use of the medication rintatolimod. This evidence, however, was deemed insufficient to approve sales for CFS treatment in the United States.
Estimates of the number of people with the condition vary from 7 to 3,000 per 100,000 adults. About 836,000 to 2.5 million Americans and 250,000 people in the UK have CFS. CFS occurs more often in women than in men and most commonly affects people between 40 and 60 years of age. Two in 100 children are estimated to struggle with CFS, and it is more common in adolescents than younger children. There is agreement that CFS has a negative effect on health, happiness and productivity, but there is also controversy over many aspects of the disorder. Physicians, researchers and patient advocates promote different names and diagnostic criteria, while evidence for proposed causes and treatments is often contradictory or of low quality.[19
Signs and symptoms
The most widely referenced diagnostic criteria and definition of CFS for research and clinical purposes was published in 1994 by the United States Centers for Disease Control and Prevention (CDC). The CDC currently recommends the following criteria for diagnosis:
- Significantly lowered ability to participate in activities that were routine before the onset of the condition, and persisting more than six months
- Physical or mental activity causes worsening symptoms that would not have been problematic before the onset of the condition, (post-exertional malaise (PEM))
- Sleep problems
Additionally, one of the following symptoms must be present:
- Difficulty with thinking and memory
- Worsening of problems with standing or sitting
Other common symptoms may include:
- Muscle pain, joint pain, and headache pain
- Tender lymph nodes in the neck or armpits
- Sore throat
- Irritable bowel syndrome
- Night sweats
- Sensitivities to foods, odors, chemicals, or noise
The CDC proposes that persons with symptoms resembling those of CFS consult a physician to rule out several treatable illnesses: Lyme disease, “sleep disorders, major depressive disorder, alcohol/substance abuse, diabetes mellitus, hypothyroidism, mononucleosis(mono), lupus, multiple sclerosis (MS), chronic hepatitis and various malignancies.” Medications can also cause side effects that mimic symptoms of CFS. Central sensitization, or increased sensitivity to sensory stimuli such as pain have been observed in CFS. Sensitivity to pain increases post-exertionally, which is opposite to the normal pattern.
Cognitive behavioral therapy
In June 2017, the U.S. Centers for Disease Control and Prevention stated that speaking with a therapist may help. A 2015 National Institutes of Health report concluded that while counseling and behavior therapies could produce benefits for some people, they may not yield improvement in quality of life, and because of this limitation such therapies should not be considered as a primary treatment, but rather should be used only as one component of a broader approach. This same report stated that although counseling approaches have shown benefit in some measures of fatigue, function and overall improvement, these approaches have been inadequately studied in subgroups of the wider CFS patient population. Further concern was expressed that reporting of negative effects experienced by patients receiving counseling and behavior therapies had been poor. A report by the Institute of Medicine published in 2015 states that it is unclear whether CBT helps to improve cognitive impairments experienced by patients.:265
A 2008 Cochrane Review concluded that CBT did reduce the symptom of fatigue, but noted that the benefits of CBT may diminish after the therapy is completed, and that due to study limitations “the significance of these findings should be interpreted with caution”. A 2014 systematic review reported that there was only limited evidence that patients increased levels of physical activity after receiving CBT. The authors concluded that, as this finding is contrary to the cognitive behavioural model of CFS, patients receiving CBT were adapting to the illness rather than recovering from it.
Patient organisations have long criticised the use of CBT as a treatment for CFS. In 2012 the ME Association (MEA) commenced an opinion survey of 493 patients who had received a CBT treatment in the UK. Based on the finding of this survey, in 2015 the MEA concluded that CBT in its current form should not be recommended as a primary intervention for people with CFS In a letter published online in the Lancet in 2016, Dr Charles Shepherd, medical advisor to the MEA, expressed the view that the contention between patients and researchers lay in “a flawed model of causation that takes no account of the heterogeneity of both clinical presentations and disease pathways that come under the umbrella diagnosis of ME/CFS”.
In 2017, the U.S. Centers for Disease Control and Prevention recommended light exercises and stretching but not in the four hours before bed to help with sleep. Stretching and movement therapies are also recommended for pain. Previously, a 2014 National Institutes of Health report concluded that while Graded Exercise Therapy (GET) could produce benefits, it may not yield improvement in quality of life and that because of this limitation, GET should not be considered as a primary treatment, but instead be used only as one component of a broader approach. The report also noted that a focus on exercise programs had discouraged patient participation in other types of physical activity, due to concerns of precipitating increased symptoms. A July 2016 addendum to this report recommended that the Oxford criteria not be used when studying ME/CFS. If studies based on the Oxford criteria were excluded, there would be insufficient evidence of the effectiveness of GET on any outcome.
A 2017 Cochrane review stated that exercise therapy could contribute to alleviation of some symptoms of CFS, especially fatigue. The Cochrane review also noted that research was inconclusive as to which, if any, type of exercise therapy was superior, and concluded that no evidence had been found suggesting that exercise therapy worsened outcomes. A 2015 review article determined that serious adverse effects, or harms, from exercise therapy were poorly reported in most studies, and determined there was insufficient evidence for a conclusion.
As with CBT, patient organisations have long criticised the use of exercise therapy, most notably GET, as a treatment for CFS. In 2012 the MEA commenced an opinion survey of patients who had received GET. Based on the findings of this survey, in 2015 the MEA concluded that GET in its current delivered form should not be recommended as a primary intervention for persons with CFS.
I was told by my Endocrinologist that these therapy’s have a 50/50 chance of helping me it’s a hit or miss situation so I’m not sure if these will work for me.
I will try later on today to do some dancing but the problem I have then is the next day I feel like I’ve been hit by a bus and can’t do anything that whole day is then a wright off.